2013 Strollathon

Written by Rick P. on . Posted in Blog

13.0921-header-strollathon-smallSeptember 21, 2013 - The fourth annual Strollathon for Rett Syndrome, a fundraiser event for Rett Syndrome research, was held Saturday in Lenexa.  Strollathons were held in Kansas, Maine and Nebraska on September 21, with more scheduled through September and October in various other cities across the country.

The Kansas Strollathon is organized by Shannon Stoiber of Olathe, whose daughter Alyssa is afflicted with Rett Syndrome. Shannon and Alyssa were joined by other families caring for children with Rett Syndrome. There were thirteen girls with Rett Syndrome at Saturday's event - three are from Olathe.  Others come from Kansas towns of Shawnee, LaCygne, Pleasanton, Garnett, North KC, and Roeland Park. Three are from Missouri cities of Gladstone, Harrisonville and Sedalia, and one family travels to KC from Minnesota for this event every year. 

What is Rett Syndrome?

Imagine the symptoms of autism, cerebral palsy, Parkinson's, epilepsy and anxiety... all in one little girl. This is Rett Syndrome.  Rett syndrome is a unique postnatal neurological disorder that is first recognized in infancy and seen almost always in girls, but can be rarely seen in boys. It is often misdiagnosed as autism, cerebral palsy, or non-specific developmental delay. Rett syndrome causes problems in brain function that are responsible for cognitive, sensory, emotional, motor and autonomic function. These can include learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion.

Help Is On The Way
The nationwide Strollathons raise funds for the International Rett Syndrome Foundation. The IRSF is focused on "funding research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services."

You can make an online donation, and learn more about Rett Syndrome at:

Learn More about Rett Syndrome

Visit the International Rett Syndrome Foundation website at

Below: Public Service Announcement (PSA) from Research to Reality campaign chair Clint Black and IRSF
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